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Organize Yourself

Enough cannot be said about the benefits of keeping your child’s records in an organized fashion.  Being organized presents you on a more professional level at meetings and saves a lot of time, energy and frustration if everything you need is on hand.  Like it or not, you are really a “case manager” advocating on behalf of your child. We do however acknowledge that in our busy lives that organization is easier said than done.  There are several organizational tools on the market that can be purchased, as well as a number of templates that can be downloaded from web-sites and put in your own binder.  Microsoft Works also has several templates that can be adapted to keep a running record of your child’s medical needs.  In addition, there are on-line registries where you can keep your child’s medical history. (see also “Your Child’s Medical History” under Crisis Services and  also “Sample Assessments Chart” .Examples of resources that can be purchased include sample forms to track assessments, hospitalizations, medications, reactions to medications, power of attorneys, etc.

  1. CANCHILD K-I-T  (Keeping It Together) –

This kit can be ordered from the McMaster University Bookstore or online or by calling Customer Service at 1-800-238-1623.  Cost is $29.95 for a single copy.  If you are an approved member some of the forms used can be downloaded as well. They are in the process of planning a Youth Kit as well.

  1. Ontario Association for Families of Children with Communication Disorders (OAFCCD) -  Parents as Partners –

Funding for this program came from an Ontario Trillium Foundation grant.  They developed a resource binder to be used to collect and file records about your child’s education.  The binder is available through workshops and directions are given on the website for creating your own. An “ALL ABOUT ME” template is also available on this site.  This booklet was designed for parents of young children with special needs and defines your child and his family for the teacher and the school.  It can also transfer into other settings and can be used as an add-on to an IEP.

  1. The Advocate’s Journal –

This is a profiling diary that guides you step-by-step through the educational process.  It covers a student’s life from birth to graduation and beyond. It is available for $20.00 from The Advocate’s Journal, 5 Martin Road, Toronto, Ontario M4S 2V1.

  1.  The Care Notebook and The Care Organizer –

These tools are distributed by Seattle’s Children’s Hospital.  The forms can be downloaded but keep in mind they are based on United States information.  (Note: most forms on this site can be ordered in Spanish, English, Vietnamese, Russian, Chinese and Somalian.)  

Links or Useful Resources for ORGANIZING YOURSELF: Waterloo Region Family Network –  Numerous courses offered throughout the year as well as peer support.
See Sample Assessments Chart
see Creating Your Child’s Profile